Background: In France, cancer is the first cause of death, an estimated 433,000 new cases of cancer occurred in 2023. Since 2007, the French network of cancer registries Francim, the Biostatistics-Bioinformatics department of Hospices Civils de Lyon (HCL), the French national public health agency (Santé publique France) and the French National Cancer Institute (INCa) have set up a partnership to provide information to support public health policies. The main results of the 2014-2019 program are presented. This joint working program leaned on 56 actions and grants partly funded by Santé publique France and INCa, dedicated to cancer registries and HCL. Results: Thanks to a new statistical method, epidemiological indicators related to more than 70 types and sub-types of cancer were published. Routine registration of an ecological deprivation index for all cancers, and of stage at diagnosis for the most frequent ones, were implemented. Hence, comprehensive studies related to incidence and survival contributed to the evaluation of the national cancer screening programs. Using both registries and health administrative databases, an innovative statistical approach allowed estimating cancer incidence at infra-national levels. Other studies addressed care pathways and quality of care for some cancers, and paediatric, adolescent and young adult's cancers. Moreover, probability of death was shown to return to low values after critical periods in disease history, which allowed improving access to insurance coverage to people having a prior history of cancer. Overall, a high level of performance and efficiency of the surveillance system was maintained over the period. Finally, issues in access to some local medical sources and combining cancer registries databases with national health databases should be improved. Conclusion: The 2014-2019 program fulfilled most of its objectives. The partnership is now facing new challenges, mainly relying on data protection and data sharing.
Group for Cancer Epidemiology and Registration in Latin Language Countries (GRELL) Meeting, Mont Saint-Michel, France, 31 may - 2 june 2023
Auteur : Lecoffre-Bernard Camille, de Brauer Camille, de Maria Florence, Uhry Zoé, Dantony Emmanuelle, Woronoff Anne-Sophie, Bouvier Anne-Marie, Lacour Brigitte, Defossez Gautier, Monnereau Alain, Remontet Laurent, Molinié Florence
Année de publication
: 2023
Pages : 1 p.
Format/Durée
: poster
