Project- or Program-Specific Steering Committees

Responsibilities and Role of Steering Committees

For a project or program (prevention program, large-scale survey/study, etc.), steering committees approve or make recommendations regarding the scope and overall strategy, the objectives and expected deliverables, and the implementation conditions. They monitor the implementation of the project or program and ensure that the objectives align with expectations.

Opinions or recommendations intended to assist public authorities in decision-making regarding health and public health safety do not fall within the scope of the steering committees’ missions.

How are members selected?

Steering committees are composed primarily of institutional representatives (e.g., ministries, agencies, other partners, etc.) nominated by their respective organizations.

Each member of these committees must complete a public declaration of interests and adhere to Santé publique France’s ethical principles. As part of the system for managing and preventing conflicts of interest established by Santé publique France, any potential conflicts of interest involving committee members were reviewed before and during the committees’ work, and the necessary management measures were implemented. Declarations of interest are published on the DPI SANTE consultation website.

Active steering committees

Steering Committee for the Cancer Partnership Work Program (PTP Cancer)

Epidemiological surveillance and monitoring of cancers in the general population are based on a partnership between Santé publique France and the National Cancer Institute (INCa), the Francim network of cancer registries, and the Biostatistics and Bioinformatics Department of the Hospices Civils de Lyon (HCL). These four partners define and implement a joint multi-year partnership work program (PTP) in line with successive cancer plans and the current ten-year strategy to combat cancer, in order to help meet surveillance and evaluation needs.

The Cancer PTP is a long-term program that outlines the actions to be taken to address the needs and challenges of cancer surveillance and monitoring, based primarily on data from cancer registries. These actions aim to:

  • regularly publish epidemiological surveillance indicators and cancer monitoring data, as well as evaluations of care and health policies;

  • strengthen the surveillance and monitoring of certain cancer sites through the routine collection of supplementary data;

  • develop new indicators, particularly in the area of health inequalities;

  • improve the performance and efficiency of the cancer surveillance and monitoring system.

The Steering Committee is composed of representatives from the four partners, and its objectives are:

  • to develop the Partnership Work Program on Cancer related to the epidemiological surveillance and monitoring of cancers and to ensure its follow-up and implementation;

  • to monitor the implementation of the work program, including compliance with deadlines for carrying out actions;

  • to identify, analyze, and propose solutions to challenges encountered in implementing the work program, including those related to resources;

  • to propose, where appropriate, adjustments or modifications to the work program.

Steering Committee for the Children’s Mental Health Survey (National Survey on Children’s Well-Being—Enabee)

As early as the spring of 2020, child welfare and mental health professionals alerted government officials and the media to the impact of the COVID-19 pandemic on the mental health of children and young people. While the health crisis has highlighted this impact and the need for action in terms of care and prevention, it has also brought to light a critical lack of data available to describe mental health in France, particularly among the youngest age groups. Consequently, Santé publique France has launched a national survey on the mental health of children and adolescents (Enabee). The establishment of a long-term system for monitoring and assessing the mental health of children starting at age 3, as desired by health authorities, is led by Santé publique France and will thus provide a comprehensive overview of the impact and determinants of mental health issues in this population.

This steering committee is responsible for supporting the project team in implementing its work program and may offer comments and make proposals regarding:

  • the scope of the initiative and the conditions under which the survey will be conducted;

  • the alignment of the survey’s objectives with public policy expectations regarding the prevention and treatment of mental health disorders in children and youth.

A steering committee composed of the sponsoring institutions and stakeholders is being established to monitor this project. It is responsible for keeping the relevant institutions informed of the project’s progress and for ensuring that the project is supported by all parties and integrated into public health plans.

Steering Committee of Osarib (Observatory on the Health of Residents Near the Bure Storage Facility Project) and the Esspol Study (Health Status and Perceived Health of Populations Living Near Potentially Contaminated Sites and Soils in the Grand Est region)

In 1999, the National Agency for Radioactive Waste Management (Andra) was authorized to establish and operate a laboratory in the town of Bure (Meuse) to study deep geological formations that could serve as a site for a future radioactive waste storage facility.

In this context, an Observatory on the Health of Residents Near the Proposed Bure Storage Center (Osarib) was established.

What are Osarib’s objectives?

The observatory aims to produce and establish:

  • a baseline health profile of the population residing in the area affected by the project;

  • the continuation, at a frequency yet to be determined, of the monitoring program to detect changes—whether adverse or favorable—in the health status of the local population.

The contextual data, as well as data on perceived health and quality of life among the general population—which are necessary for Osarib—will be drawn, for the baseline health assessment, from the Esspol study (Health Status and Perceived Health of Populations Living Near Potentially Polluted Sites and Soils in the Grand Est region), conducted by Santé publique France in collaboration with ORS Grand Est.

What are the objectives of this study?

  • To describe perceived health, quality of life, anxiety levels, and environmental perceptions among populations living near potentially contaminated sites (industrial areas) or a large-scale industrial project;

  • to cross-reference these perceived health data with health indicators obtained from the SNDS (objective health measures);

  • to compare these findings with a population not living near such sites. In addition to the population living near the future Bure storage facility—selected due to its proximity to a large-scale industrial site—other populations living near industrial basins will also be included.

A Steering Committee has been established to oversee this work. Its role is to validate the objectives and protocol of the Esspol and Osarib studies and to make recommendations to ensure their smooth implementation. This committee also aims to define a protocol for the ongoing assessment of the health status of nearby populations at a frequency determined by the Scientific Advisory Board for these studies.

Steering Committee on Drowning Prevention and Surveillance

Accidental drownings account for approximately 1,000 deaths per year in France, including between 400 and 500 between June and September. This is a matter of prevention, as these deaths are preventable: people of all ages and all types of swimming locations are affected, and accidental drownings are the leading cause of accidental death in everyday life among people under 25 in France.

From 2006 to 2021, Santé publique France conducted the NOYADES survey every three years during the summer to record drownings in France and describe the characteristics of the victims and certain circumstances surrounding the drownings. Since the summer of 2023, an annual surveillance system has been in place.

A Steering Committee for Drowning Surveillance and Prevention has been established with Santé publique France’s partners: the General Directorate of Health, the Directorate of Sports, and the National System for the Observation of Water Sports Safety (Snosan).

This steering committee is responsible for:

  • monitoring the implementation of the drowning surveillance program by Santé publique France and Snosan;

  • coordinating the communication of results among Copil member organizations;

  • sharing drowning prevention materials produced by the Copil’s member organizations.

Orchidée Project Strategic Committee (Costrat)

The Orchidée project aims to establish a national network of hospitals involved in routine, near-real-time epidemiological surveillance and in responding to public health emergencies. This network is based on the secondary use of health data via hospital health data warehouses. Participating hospitals work together to develop standardized scientific protocols and generate epidemiological indicators that feed into a collective surveillance system. These indicators are regularly transmitted to Santé publique France, which interprets them and shares the information with regional, national, and international decision-makers, as well as with the general public.

The project is co-funded by the European Commission, coordinated by Santé publique France, and also involves the Health Data Hub, the University of Bordeaux, the School for Advanced Studies in Public Health, and numerous hospitals.

The project’s governance structure calls for the establishment of a Strategic Committee, which was formed in 2025.

The committee’s role is to:

  • share the progress of the Orchidée project over the past year and the outlook for the project’s development in the coming year,

  • analyze the project’s role within the broader framework of national epidemiological surveillance systems,

  • define, where necessary, the strategic directions required based on the project’s evolution.

Orchidée Project Steering Committee (Copil)

The Orchidée project aims to establish a national network of hospitals involved in routine, near-real-time epidemiological surveillance and in responding to public health emergencies. This network is based on the secondary use of health data through hospital health data warehouses. Participating hospitals work together to develop standardized scientific protocols and generate epidemiological indicators that feed into a collective surveillance system. These indicators are regularly transmitted to Santé publique France, which interprets them and shares the information with regional, national, and international decision-makers, as well as with the general public.

The project is co-funded by the European Commission, coordinated by Santé publique France, and also involves the Health Data Hub, the University of Bordeaux, the School of Advanced Studies in Public Health, and numerous hospitals.

The project’s governance structure calls for the establishment of a Steering Committee, which was formed in 2025.

This committee, composed of representatives from the partners, is responsible for:

  • implement the project’s strategic guidelines,

  • monitor the project’s progress,

  • make decisions between various options (indicators to be produced, operational and technical developments, etc.).

Steering Committee for the School-Based Child Health Survey (CP-CM2) – Enabee-Elan

Santé publique France has developed a new survey that includes a school-based health examination for children, combining the Enabee (Study on Children’s Well-Being) and CE1-CE2 surveys (Survey on Physical Activity and Nutrition Among Schoolchildren in France in CE1 and CE2 Grades). This new survey will strengthen the monitoring of children’s health in France, focusing on current issues such as body mass—a monitoring effort that has been suspended since 2016—and mental health, while improving our understanding of the determinants in these two health domains (screen time, sleep, physical activity, sedentary behavior). Data collection is scheduled for 2028.

The role of this committee is to:

  • Ensure that the study’s objectives align with the expected outcomes regarding prevention, guidance, and even treatment of mental health disorders in children 

  • Ensure the proper implementation of the study protocol and its coordination with other surveys conducted in school settings