Project- or program-specific steering committees

Roles and Responsibilities of Steering Committees

For a project or program (prevention program, large-scale survey/study, etc.), steering committees validate or make proposals regarding the definition of the scope and overall strategy, the definition of objectives and expected deliverables, and the selection of implementation conditions. They monitor the implementation of the project or program and ensure that objectives align with expectations.

Opinions or recommendations intended to assist public authorities in decision-making regarding health and public health safety do not fall within the scope of the steering committees’ missions.

How are members selected?

Steering committees are composed primarily of institutional representatives (e.g., ministries, agencies, other partners, etc.) nominated by their respective organizations.

Each member of these committees must complete a public declaration of interests and adhere to Santé publique France’s ethical principles. As part of the conflict of interest management and prevention system established by Santé publique France, any potential conflicts of interest among committee members were verified before and during the committees’ work, and the necessary management measures were implemented. Declarations of interest are published on the DPI SANTE consultation website.

Active steering committees

Steering Committee for the Cancer Partnership Work Program (PTP Cancer)

Epidemiological surveillance and monitoring of cancers in the general population are based on a partnership between Santé publique France and the National Cancer Institute (INCa), the Francim network of cancer registries, and the Biostatistics and Bioinformatics Department of the Hospices Civils de Lyon (HCL). These four partners define and implement a joint multi-year partnership work program (PTP), consistent with successive cancer plans and the current ten-year strategy for the fight against cancer, to help meet surveillance and evaluation needs.

The Cancer PTP is a long-term program that outlines the actions to be taken to address the needs and challenges of cancer surveillance and monitoring, based primarily on data from cancer registries. These actions aim to:

  • regularly publish epidemiological surveillance indicators and cancer monitoring data, as well as evaluations of care and health policies;

  • strengthen the surveillance and monitoring of certain cancer sites through the routine collection of additional data;

  • develop new indicators, particularly in the area of health inequalities;

  • improve the performance and efficiency of the cancer surveillance and monitoring system.

The Steering Committee is composed of representatives from the four partners, and its objectives are:

  • to develop the Cancer Partnership Work Program regarding the epidemiological surveillance and monitoring of cancers and to ensure its follow-up and implementation;

  • to monitor the implementation of the work program, including with regard to the timelines for carrying out actions;

  • to identify, analyze, and propose solutions to difficulties encountered in implementing the work program, including with regard to resources;

  • propose, where appropriate, reorientations or modifications to the work program.

Steering Committee for the Children’s Mental Health Survey (National Survey on Children’s Well-Being – Enabee)

As early as spring 2020, child welfare and mental health professionals alerted government officials and the media to the impact of the COVID-19 pandemic on the mental health of children and young people. While this impact and the need for action on care and prevention were highlighted by the health crisis, they also brought to light the critical lack of available data to describe mental health in France, particularly among the youngest. Consequently, Santé publique France has launched a national survey on the mental health of children and young people (Enabee). The establishment of a sustainable system for monitoring and evaluating the mental health of children starting at age 3—a priority for health authorities—is being led by Santé publique France and will thus provide a comprehensive overview of the impact and determinants of mental health issues in this population.

This steering committee is responsible for supporting the project team in implementing its work program and may offer comments and make proposals regarding:

  • the scope of the initiative and the conditions under which the survey will be conducted;

  • the alignment of the survey’s objectives with public policy expectations regarding the prevention and management of mental health disorders in children and youth.

A steering committee composed of the commissioning institutions and stakeholders is established to oversee this project. It is responsible for informing the relevant institutions of the project’s progress and ensuring that the project is supported by all parties and integrated into public health plans.

Steering Committee of Osarib (Health Observatory for Residents Near the Bure Storage Facility Project) and the Esspol Study (Health Status and Perceived Health of Residents Near Potentially Contaminated Sites and Soils in the Grand Est Region)

In 1999, the National Agency for Radioactive Waste Management (Andra) was authorized to establish and operate a laboratory in the town of Bure (Meuse) to study deep geological formations that could potentially host a future radioactive waste storage facility.

In this context, an Observatory on the Health of Residents Near the Bure Storage Facility Project (Osarib) was established.

What are Osarib’s objectives?

The observatory aims to produce and establish:

  • a baseline health profile of the population residing in the area affected by the project;

  • the continuation, at a frequency to be determined, of the monitoring system to detect changes—whether adverse or favorable—in the health status of the local population.

The contextual data, as well as the data on perceived health and quality of life among the general population, required by Osarib, will come—for the baseline health assessment—from the Esspol study (Health Status and Perceived Health of Populations Living Near Potentially Polluted Sites and Soils in the Grand Est region), conducted by Santé publique France in collaboration with ORS Grand Est.

What are the objectives of this study?

  • To describe perceived health, quality of life, anxiety levels, and environmental perceptions among populations living near potentially polluted sites (industrial basins) or a large-scale industrial project;

  • cross-reference these perceived health data with health indicators obtained from the SNDS (objective health);

  • compare with a population not living near these types of sites. In addition to the population living near the future Bure storage facility, selected due to its proximity to a large-scale industrial site, other populations living near an industrial basin will also be included.

A Steering Committee has been established to oversee this work. Its role is to validate the objectives and protocol of the Esspol and Osarib studies and to formulate recommendations to ensure their smooth implementation. This committee also aims to define a protocol for the periodic reassessment of the health status of populations living near industrial sites at intervals determined by the Scientific Advisory Board for these studies.

Steering Committee on Drowning Prevention and Surveillance

Accidental drownings account for approximately 1,000 deaths per year in France, with between 400 and 500 occurring between June and September. This is a matter of prevention because these deaths are preventable: people of all ages and all swimming locations are affected, and accidental drownings are the leading cause of accidental death in everyday life among people under 25 in France.

From 2006 to 2021, Santé publique France conducted the NOYADES survey every three years during the summer to record drownings in France and describe the characteristics of the victims and certain circumstances surrounding the drownings. Since the summer of 2023, an annual monitoring system has been implemented.

A Steering Committee for Drowning Surveillance and Prevention has been established with Santé publique France’s partners: the Directorate General for Health, the Directorate of Sports, and the National System for Monitoring Water Sports Safety (Snosan).

This steering committee is responsible for:

  • monitoring the implementation of the drowning surveillance system by Santé publique France and Snosan;

  • coordinating the communication of results among the Copil member bodies;

  • sharing drowning prevention measures developed by the Copil’s member organizations.

Strategic Committee (Costrat) of the Orchidée Project

The Orchidée project aims to establish a national network of hospitals involved in routine epidemiological surveillance in near real time and in responding to public health emergencies. This network is based on the secondary use of health data via hospital health data warehouses. Participating hospitals work together to develop standardized scientific protocols and generate epidemiological indicators that feed into a collective surveillance system. These indicators are regularly transmitted to Santé publique France, which interprets them and shares the information with regional, national, and international decision-makers, as well as with the general public.

The project is co-funded by the European Commission, coordinated by Santé publique France, and also involves the Health Data Hub, the University of Bordeaux, the School of Advanced Studies in Public Health, and numerous hospitals.

The project’s governance structure calls for the establishment of a Strategic Committee, which was formed in 2025.

The role of this committee is to:

  • share the progress of the Orchidée project over the past year and the outlook for the project’s development in the coming year,

  • analyze the project’s role within the broader framework of national epidemiological surveillance systems,

  • define, where necessary, the strategic directions required based on the project’s evolution.

Orchidée Project Steering Committee (Copil)

The Orchidée project aims to establish a national network of hospitals involved in routine epidemiological surveillance in near real time and in responding to public health emergencies. This network is based on the secondary use of health data via hospital health data warehouses. Participating hospitals work together to develop standardized scientific protocols and generate epidemiological indicators that feed into a collective surveillance system. These indicators are regularly transmitted to Santé publique France, which interprets them and shares the information with regional, national, and international decision-makers, as well as with the general public.

The project is co-funded by the European Commission, coordinated by Santé publique France, and also involves the Health Data Hub, the University of Bordeaux, the School of Advanced Studies in Public Health, and numerous hospitals.

The project’s governance structure includes the establishment of a Steering Committee, which was formed in 2025.

This committee, composed of representatives from the partners, is responsible for:

  • implement the project’s strategic guidelines,

  • monitor the project’s progress,

  • make decisions regarding various options (indicators to be produced, operational and technical developments, etc.).