Monitoring cerebral palsy in Europe: the SCPE network.

Cerebral palsy (CP) is the most common severe motor disability in children, with a prevalence of approximately 2 per 1,000 live births. In 1998, 14 registries of children with CP across eight European countries established a network called “Surveillance of Cerebral Palsy in Europe” (SCPE). The primary objectives were to agree on the definition of CP, the inclusion and exclusion criteria, and the age at which cases should be registered. A decision algorithm and a classification tree were adopted. Following this harmonization effort, the registries pooled their data. Currently, the database contains 11,300 cases of children with CP, born between 1976 and 1998 in the regions covered by the registries. One of the major contributions of this database is the ability to monitor trends in CP over time within subgroups of children, which was impossible at the level of a single registry, which often had only a small number of cases per subgroup. This network also makes it possible to initiate research on clinical aspects of CP. (R.A.)

Author(s): Sellier E, De la Cruz J, Cans C

Publishing year: 2010

Pages: 191-4

Weekly Epidemiological Bulletin, 2010, n° 16-17, p. 191-4

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