FranceCoag Network: French cohort of patients with inherited bleeding disorders. An update for 2011

Hemophilia A and B, von Willebrand disease, and other bleeding disorders caused by a severe form of inherited coagulation protein deficiency (IPD) are rare diseases. These conditions share a number of bleeding manifestations and are managed in a similar manner. For all these conditions, the intensity and frequency of bleeding are most often related to the severity of the HCPD. The FranceCoag Network is a national registry designed to collect information on patients with hemophilia or the most severe forms of von Willebrand disease, as well as individuals with other HCPs: deficiencies in fibrinogen (factor I), factor II, etc. It therefore does not cover platelet disorders. (R.A.)

Publishing year: 2011

Pages: 6 p.

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