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Experts with firsthand experience offer a vital, practical perspective on poverty [Interview]
In Belgium, "experts by experience of poverty" are employed as professionals and integrated into federal public institutions. Their past experiences with severe social exclusion are...
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A supportive learning environment for patients who are learners
Founded fifteen years ago, the University of Patients – Sorbonne supports patient engagement in the healthcare system and beyond by offering degree programs. To validate the experiential...
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Learning to step back from your own experience as a patient in order to share it
While people with chronic illnesses have a good understanding of their condition and its impact on their daily lives, they need support to effectively convey this experiential knowledge...
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Talking about disability—but not just that! [Interview]
People with disabilities often have very limited opportunities to express themselves. The French Cerebral Palsy Federation has developed the Academy of User Experts, a training program...
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Each year, patients teach future general practitioners for a total of 300 hours [Interview]
As part of the general practice residency program at the Bobigny School of Medicine, about twenty patients with chronic conditions and their caregivers are actively involved in teaching...
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Environmental health embraces shared expertise
The impact of pollution on human health and natural ecosystems, as well as on biodiversity, is a major concern. Amid tensions with institutions, new structures and actors are emerging to...
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Cooperative and interactive workshops were held with the organizations [Interview]
The city of Marseille has launched a study on the impact of air quality on health. To involve citizens in this process, it sought the assistance of the National Commission for Public...
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Fostering dialogue between science, society, and public policy
At the National Institute for Public Health and the Environment (RIVM) in the Netherlands, citizen science is a strategic priority. Many research projects—which focus on people’s daily...
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A study involving formerly homeless individuals
To better support homeless individuals as they transition to a new life in permanent housing, a participatory research study was conducted involving both the individuals directly...
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Building trust was essential to conducting the survey among the Travelling Community [Interview]
An epidemiological study on the health status, healthcare utilization, and preventive care among Travellers in Nouvelle-Aquitaine was conducted between January 2019 and March 2022. To...